Agenda-Workshop on Developing Systems For Evidence Generation
9:00-9:15 Welcome and Presentation of Workshop Objectives
Wylie Burke, Chair
University of Washington
9:15-9:35 Generating Evidence for Decision Making: Does the Type of Decision Being Made Influence the Evidence Needed?
Steven Teutsch
Los Angeles Public Health Department
9:35-11:45 Panel: Creating Evidence Systems
Each of the following speakers will address the following questions:
•What are your goals for genetic research?
•How do you decide what studies to pursue?
•What barriers did you overcome or still face?
•What do you see as the biggest research challenges going forward?
9:35-9:50 HMO Research Network
Robert Davis
Director of Research
Kaiser Permanente Georgia
9:50-10:05 Veterans Affairs
Sumitra Muralidhar, Ph.D.
Office of Research and Development
10:05-10:20 InterMountain Health
Marc S. Williams
Director, Clinical Genetics Institute
10:20-10:40 BREAK
10:40-11:45 Discussion
11:45-1:00 LUNCH
1:00-2:45 Panel: Current Practices in Moving From Evidence to Decision
Each of the speakers will address the following questions:
•What uses of genetics does your program consider?
•What evidence do you need?
•What kind of process is used to make the decisions?
•What infrastructure is needed to support the process?
1:00-1:15 Rare Disease Model
James Perrin
Professor of Pediatrics, Harvard Medical School
1:15-1:35 Discussion
1:35-1:50 Duke Guided Genomic Studies
Geoffrey Ginsburg
Director, Center for Genomic Medicine
1:50-2:05 National Cardiovascular Disease Registries
Ralph Brindis
Regional Senior Advisor for Cardiovascular Diseases
Northern California Kaiser Permanente
2:05-2:45 Discussion
2:45-3:00 BREAK
3:00-3:30 Panel: Where are the Gaps?
Three invited speakers will discuss their perspectives on the gaps in systems for evaluation of genome- based health care. Each participant will take 10 minutes to describe what they see as gaps, given the day’s presentations.
3:00-3:10 Bruce Quinn
Senior Health Policy Specialist
Foley Hoag LLP
3:10-3:20 Al Berg
University of Washington
3:20-3:30 Kathryn Phillips
Professor
UCSF School of Pharmacy
3:30-4:15 Discussion
4:15-4:45 Brief Summary of What Was Presented and Next Steps
Wylie Burke
Chair
University of Washington
4:45 ADJOURN
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